This blog is for any and all who want to follow the progress of baby Lucy. Lucy Beatrice Peterson was born Tuesday, March 13, 2007 weighing 9 pounds, 1 oz.
We had been concerned throughout Holly's pregnancy that she would have the same genetic condition as her brother Noah (congenital hyperinsulinism, AKA PHHI). Dr. Cook (Noah's endocrinologist for the last 8.5yrs) has been working on her case and has diagnosed her with the same condition. The only reliable treatment for this condition is a subtotal pancreatectomy.
Scott and Holly had consulted with a surgeon Dr. Cook recommended several months ago in preparation for this possibility. The surgeon left for vacation today and the surgery will be scheduled sometime after his return (the week of March 25th).
Right now her bilirubin count is a little high so she has a blindfold (well I'm sure it has a more civilized name) and is under the lights. She's doing really well at eating by mouth but has a nasogastric feeding tube to help keep her blood sugar up when she decides to sleep through feeding times!
Please pray that they can keep her blood sugar in a safe range until the surgery. Scott and Holly decided against a carepage so this is your method of update. Feel free to post comments.
Signing off,
Auntie Marie
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2 comments:
Welcome little Lucy Bea. We are so glad God put you in our family. We all love you very much and are praying for you.
Hey, Congratulations, Holly and Scott!!!! Brand new baby girls are such a treasure and Lucy is a cutie for sure. Hope eveything goes well for her. Please keep us posted. Love the pics and give those 2 big bros a hug for us.
Debbie and Dennis Patrick
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