New pictures!

These pictures were taken Easter weekend (Saturday and Sunday). Mommy likes to wear baby Lucy in her Hotsling. The other pictures are Aunt Bekah holding Lucy at Grandma and Grandpa Peterson's house before Easter dinner and Lucy and Daddy taking their Sunday afternoon nap. Lucy looked very cute in her Easter dress.

She's home!!!

Sorry for the delay in updating the page, Lucy Bea arrived home around 12:45pm on Thursday afternoon. She gave us a couple of scares with low blood sugar but has stabilized and actually hasn't had any insulin for about 36hrs! She still has a little bit of pancreas (1%) that is keeping her stable without insulin for the time being. She still gets her blood sugar checked every 1.5 hrs or so. She is doing well in eating and sleeping and likes to sleep from 12am-5am (skipping a feeding). She has done that the two nights she has been home and has still kept her blood sugar stable. She went for her first outing today (although she stayed in the car the whole time) while Scott and Holly alternated doing some shopping (they actually took all three kids!). She is getting some nursing visits at home and today they brought a baby scale we can keep. Please pray that she continues to grow and gain weight normally. She had been on pancreatic enzymes in the hospital following the surgery but they discontinued them when she went home and so far so good (we have to watch her stools for proper digestion and her weight/length for growth--abnormalities in either could be a signal she needs the enzymes). She weighed 9lbs 14oz when she was discharged and today she weighed in at 10lbs 1oz! Please pray that her blood sugars would continue to be stable and that she wouldn't need the pancreatic enzymes. I'll post some more pictures when I get a chance, she certainly is a cutie! I have to go back to Omaha tomorrow afternoon and will miss being a part of all the fun! I'll try to continue to post periodic updates (including pictures).

Auntie Marie

Going home?

There is talk that Lucy might come home sometime tomorrow. Her blood sugar was pretty stable today (no lows and only 1 high). Please pray that everything would work out for her to come home tomorrow!

Marie

Scary day!

Scott and Holly were trained how to work the insulin pump today. Things went well until around 2:30pm. The doctor prescribed a base insulin dose and a change in dose during/after a feeding. Holly changed the setting to "feeding" as prescribed but Lucy didn't take all of her feeding and Holly suspected the insulin dose would be too high. She was right, her blood sugar started to drop, fortunately we were able to wake her a little bit and she ate some more and her blood sugar started to rise, Holly also suspended the pump so she wouldn't get any more insulin. They continued to check her blood sugar several times to make sure it went up. It went up for a while but then dropped from the 80's to the 20's and she had what we think was a mild seizure. They were able to get her to eat a little more by mouth (formula and also sugar water) they also gave her dextrose through her PIC line but it took a couple of hours of no insulin and lots of sugar water to raise her blood sugar. The nurses in the PICU have not been trained on the pump so Scott and Holly have all the responsibility for her insulin.

Please pray they would find the proper dose to keep her blood sugar stable and that she would not have any adverse effects from the seizure (and that she can come home soon!).

Auntie Marie

Waiting...

Things are going very well. Lucy is taking all of her feedings by mouth so bye-bye NG tube! She nurses, takes a bottle of breastmilk, and a bottle of formula and gets 2-3oz every three hours. She is on insulin and will be forever but that's okay. Dr. Cook wants to try her on an insulin pump so she won't have to have injections but we have to wait 2 days for the pump to get here and then wait for her blood sugar to stabilize and figure out the proper dosage. Mommy and Daddy are getting antsy to bring her home. The only thing they use the PIC line (the big hunky iv in her arm) for now is for insulin so when the pump gets here hopefully it will come out! Please pray for the pump to get here miraculously soon and that her blood sugar would stabilize quickly so she can come home! When the PIC line comes out she will be able to wear more of her clothes, Lucy says "thanks Aunt Kristin for the little dresses with the snaps at the top so I have some clothes to wear." She loves her little rainforest waterfall crib toy (you can see it in the background). She was on her tummy yesterday and was mad that she couldn't see it and lifted her head like a pro to look at it. She got to meet Andy and Noah for the first time on Friday night. Noah hasn't really paid much attention to her but he is more than willing to make sure her toys get played with (he also loves the rainforest waterfall toy). Andy has patted her head and talked to her a little bit. He likes visiting her because he get to watch cartoons on tv.

Thanks for all the prayers, cards, meals, etc. they are all very much appreciated!

Aunt Marie

Pretty in pink!